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Bravery

June 19, 2014 by Dee

As I write this my adored little sister is under the surgeon’s knife 2,600km away.

This isn’t minor surgery, this is a prophylactic bilateral mastectomy and free flap reconstruction. (You can google those if you want) In short, she’s seeing off her ‘girls’ (the ones who made overt threats that they wanted to kill her in November) and the surgeons are recycling other parts of her torso into new boobs. All in the name of removing that long term, underlying fear that one day she might have to hear the words ‘the cancer’s come back’.

It’s sobering, as I know that had my own journey last November taken the same turn, I too, at some point, would be doing the same. The idea is sensible and good, and brave. And the reality is bigger than I expected.

When she and I spoke earlier in the week, she talked about the fear of not waking up from surgery on one hand, and almost in the same breath we joked about Deb Cohen’s Mastectomy Beyonce Dance off (neither Hills nor I have Deb’s killer moves). We also sent the video below to her surgeons for a laugh (no doubt they get sent it often)

We talked about the after and the prospect of going from a D to a B, from an hourglass to a pear, and how her middle son who loves to snuggle in will be sad about there being less snuggle room.

I sent her a text yesterday full of love and empathy about becoming gorgeously dainty in the boob department, she replied with love and with calm. The decision is made, the post operative bedlam will be weathered with great support from friends and family, and I get to travel those 2600km on Saturday and be big sister, and auntie Dee and I am glad to have the flexibility in my world to make that happen.  I am glad that family is only 2600km away and no more.

But above all I am awed by her bravery, and in making a big decision, a big change all in favour of a better chance at a long and healthy life.

It’s made me wonder what changes I am, or am not prepared to make for the same.

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The Awkward In Between

December 3, 2013 by Dee

You remember the rules, right? Don’t blog about work – you can’t call out a client on your blog and not expect it to come back and bite you on the arse……and don’t blog about the family as each person’s story is theirs to tell, and not mine.

Well, I’m breaking the second rule today for one reason, and that’s the same one I’ve broken it for before, and that’s to emphasise the fact that you should take care of yourself, you should be aware of your family health histories and be smart, keep an eye on the signs.

If you’ve followed this blog for any length of time you’ll have come across the Boob Checking Archives. I’ve kept you guys up to date from first mammogram, through Mum’s diagnosis and so on, and I know, you really don’t want to be thinking about my boobs, or your mum’s boobs at this moment… but take a deep breath, and let’s get this over with… because to NOT think about them with their health in mind, doesn’t bear thinking about (see what I did there?).

Anyway… a couple of weeks ago I missed a call from Lil’ Sis. Thinking nothing of it I texted her that I was out on a train, and promised that I’d call her in the morning.

I didn’t get a chance to… Mum called me first.

“Dee, just letting you know…*”

It was that call that had been in the back of my mind for years… the one that said, one day, our family history would catch up with my generation.

And it has.

Now this is kind of a kick in the guts, not just because, you know, the big C, but because our aunt, (the one the doctors thought would be the MOST likely to have the BC gene mutation) had been gene tested; the results of which had proven inconclusive…

So for whatever reasons, the doctors thought my grandmother’s and aunts’ (both of theirs) cancers were less likely to be genetic (oh, and did I mention my mother’s? The advanced age at which she was diagnosed (60) also meant ‘not genetic’) – so while the girls in my generation had remained vigilant… we felt like maybe the pressure was off a tiny bit… maybe our family history was just an anomaly restricted to two generations.

Not so.

For as disconcerting is Lil’ Sis’ news is… it is compounded by the news that our cousin is also staring down the same barrel, and is by all accounts further along this path. That’s two in our generation in the same month. It’s WTF worthy, to be sure.

So, given that at the behest of my new Melbourne GP, I’ve been under the care of a breast surgeon, I called their offices and asked their advice… basically saying “should the proposed MRI we’ve been talking about be moved up?”

To which they replied, “Absolutely.”

Now, the wonderful thing about private healthcare is absolute speed at which things get done… I called on the Friday, got the word back from the surgeon to go ahead on the Monday and had the MRI on Tuesday afternoon.

The procedure itself is less awkward than the old mammogram, certainly less invasive… but well, if you’re a claustrophobe and sensitive to loud noise, it isn’t exactly pleasant. However, it was over in 20mins and I was there and back without losing more than an hour and a half of the day. I hadn’t really thought anything of the procedure, nor anticipated results, just got on with the rest of the week. Until Thursday when I got a call from the surgeon herself…

“Hi Dee, just ringing to let you know, your boobs are fine… but there are a couple of other things we’d like to look at further.”

“[redacted]!!”

I was in the middle of teaching a class… so I awkwardly listened to the doctor, accepted her advice and asked her to proceed with booking the extra tests and went back to class.

It was rather difficult to concentrate.

The tests required were an ultrasound of my liver, and an x-ray of my right humerus. There was no mention of what they thought they were looking at, though the surgeon did say, “Don’t worry, it’s probably just a liver cyst” – but no mention of what they could/couldn’t see in my arm.

And so, after the final call back I was booked in for the ultra sound and x-ray today.

I went, I got the scans and as suspected, the sonographer advised that I was one of the population’s 5% that has a liver cyst (I’m so special, me!). It’s asymptomatic so I’ve never been bothered by it, and it will probably remain that way. Hurrah!

The x-ray however, is still up for grabs, I won’t have any further info on that until Thursday when I meet with the surgeon.

I guess that whole story was the preamble for the following; some thoughts about living in that state between “we have some uncertain news” and the certainty that it is, or isn’t ‘something’.

I had a choice at the point the surgeon’s nurse said “we need you to come back in”. I could choose to be terrified and play through all the possible outcomes over and over in my mind and let them make me fearful or depressed. Or I could chose to ‘deal with it when the time came’ and carry on with the week as planned.

I chose a variation somewhere in between, there were moments especially early on when I’d wonder… I mean… when you’ve an issue in one place AND your liver, the first thing I think is… metastatic cancer… cancer of the arm… or, something.

I had a choice to take the surgeon at her word when she said “It’s probably just a cyst” or I could be the cynic, thinking instead that she was only telling me such a thing so that I’d feel ok for that ‘last week when I felt fine’ because everyone knows, you don’t actually start getting sick until you get that diagnosis…

I still have a choice; to believe that all will be well, even if all isn’t well. I can put my faith in the hands of the doctors and their wonderful sciences, and I can shore up my resources with my friends who have been standing in the gap and praying for good reports.

The truth is we don’t walk out our lives with any more or less certainty from one day to the next… it could be a diagnosis, it could be speeding car. We always think it isn’t going to be us, and frankly some days it just is.

So, I’m still in that ‘awkward in between’ – I have 50% less concern than I had this morning, and you know what? I feel like things are just fine. But there’s still that 50%… there’s still ‘something’ about my arm. And whatever it is, in the middle of all the potential fears, the best thing about this week has been the people around me who’ve checked in to make sure I’m ok, who’ve promised prayer from here, to Sydney and as far afield as the Eastern US. A significant few who would drop everything for me.

As I would for them.

You can say what you want about the church as an institution, but as a community. I’m glad for them, really glad.

So, I’ll keep you posted about any results on Thursday, and until then, your girls? When was the last time you checked them?

*About Lil’ Sis, I’m not telling her story here… any more than to say we’re as relaxed as you can be given that as she’s been as vigilant as the rest of us, it’s a very early catch by all accounts.

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Looking after the Girls

June 18, 2012 by Dee

I had a bit of a weep today.

I was standing in a clinic, naked from the waist up and the radiographer advised me she’d like to do a follow up shot. She’d done the mammogram, both sides, a procedure that’s uncomfortable but unremarkable really… and she hadn’t appeared too concerned at what she’d seen, or hadn’t seen. But the doctor wanted to get a closer look.

I burst into tears.

I’m 44, I’m close to the age my aunts were when they were first diagnosed, I’m close to the age my grandmother was when she was diagnosed, while she was carrying my mother.

I was unprepared for the fact that my advancing years brings the possibility that it will be my turn next just that much closer, and I was unprepared for how much the fear of it was simmering away in my subconscious.

It’s been 3 years since my last scan, I was surprised, it doesn’t seem that long ago, so when I re-booked I was more afraid given that the time between scans was so long… I’m supposed to have annual checks… time flies.  So in the week between referral and booking I’ve played over in my mind what I’d do, if in fact they’d found anything untoward.

I’m reasonably confident I’d take a radical approach and go for bi-lateral (both sides) mastectomy and reconstruction all in the same hit, regardless of how small any lesions were.  I would rather go through that and the medium term discomfort and associated emotional issues than wake up every day wondering if today is the day any cancer came back.  It’s what my mother did, and while, at diagnosis,  she was significantly older than I am today, she made the tough choice and has never looked back… it’s been 6 years for her, and there have been no new concerns about this aspect of her health.

So, I had a bit of a weep today.  A weep at the possibility that in one instant my world could change radically, and another that…

… it didn’t.

 

 

 

SO, when was the last time you, or the girls close to you got checked?  If it’s been a while, what are you waiting for?

If you’re interested about this part of my world, if you need any encouragement to get checked – well,  the boob checking archives are here.

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Mupdate

November 1, 2006 by

My mother is New Zealand’s latest titless wonder. (She’d really hate reading that, it’s my little inside joke… so if you bump into her… Mum’s the word ok?)

This month’s been a bit of a roller coaster and I know, mentioning the ‘C’ word actually makes things feel bigger than life. But here’s the thing. The really good thing is that at no stage have the surgeons or doctors given us any reason to believe that this cancer is going to kill her. She’s only 60, she’s got a few years left in her yet… A V good thing I’m sure you’ll agree. And an advertisement for early detection… (on that note… have you been checked? Are you doing your self checking? )

ahem… as you were…

Having said all that, on Tuesday my brave little Mum chose to have a bilateral mastectomy instead of a lumpectomy and ongoing radiotherapy. In anyone’s book I reckon that’s a pretty bold move… I mean, seeing off your girls like that isn’t exactly an easy choice…

At least it isn’t for me at nearly 40 and never been … well… you know…

It’s a thought that comes up in my mind now and again, given our history and all, I wonder if it’s the wiser choice but with the exception of my grandmother the age of onset has always been much later than 40… so I feel like I’ve got time and I’m having the boob sandwich again early next year… It’s that first one that was the hard one…

So, there you are… the update… thanks for your generous thoughts and prayers from one side of the world to the other and points between it’s extraordinary to have such positive vibes at such a time…

You guys rock… no seriously… you are rockin…

Just thought you should know…

You’re the best.

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